Friday, June 12, 2009

PPCM

Anyone else been through this or know someone who has? I had our baby 2 years ago and was diagnosed with peripartum cardiomyopathy...looking for someone else to talk to about it because I don't know anyone who'se had it and I'm facing some important decisions. I feel weird posting this, but feel free to leave a comment.

4 comments:

Maria's Mommy said...

i found groups on facebook and myspace but no blogs yet your the first!! No one even knows what it is. How are you? What is your EF? I had her in January and was dx then.

Anja said...

I know you've always been thinking about adoption, you should read Paige Gibson's blog, (there's a link on my page) she's an LDS social worker, she has some awesome stories that usually make me cry. I just think if I was in your situation, and maybe deciding not to have my own babies anymore, these stories would help me feel better about adoption and being able to see how you are actually helping another person as well. I don't know, just a thought.

RonElaine said...

I checked out wikipedia and they have a few resources at the end, including some research being done at UofU and a website (which you may already have).

Hope this helps - will let you know if I find anything else!

thrice said...

I’m so sorry. Go to http://amothersheart.org/members/ for the latest info and support. You are not alone.

Best wishes,

Anne ( a fellow PPCMer)